Archive for the ‘Uncategorized’ Category

Sharing Mommy Moments for Mother’s Day

Friday, May 12th, 2017

Family walking outdoorsMother’s Day is coming up this Sunday. Let’s take some time to share special moments and memories.

What are some meaningful memories you have of your mother?

Are you a mom? What are some of the most memorable moments with your child that you cherish?

Do you have any humorous stories that would be fun to share?

Here are a couple from me to start us off:

“Dinner’s ready! Wash your hands!” my mother calls. We all show up at the table and it’s obvious that my brother’s hands are not clean. “But I washed them!” he protested. “So why are they still dirty ?” my mother asks. He looks at his hands to see the dirt on the top of his hands (not on his palms) and says “Oh – I had to wash the top, too??”

When we got a new TV and I was having trouble figuring out how the remote control worked, my son picked up the remote and took over effortlessly. My daughter then turned to me and said “Mommy – you need to practice more!”

Here are some from my colleagues:

“Walk…don’t run” my mother said. I wish I had listened. I was so excited that “our” lake was frozen enough that I could ice-skate, so I started to run up the outside stairs from the lake to the house, and of course, slipped on the icy step and fractured my wrist.  No skating that season for me…

One great memory I have from growing up with my mom is her surprise lunches. Every day at school I would sit down and open my lunch box to see what she had put together for me. She always cut my peanut butter and jelly sandwiches into fun shapes and designs and often included a little love note. It was as if I was getting a hug from her all the way at school and it always put a big smile on my face.

What’s your mommy moment? Please share.

And to all moms and moms-to-be, have a wonderful Mother’s Day!

 

Thank you to all nurses!

Wednesday, May 10th, 2017

Nurse holding babyIf your baby was in the NICU, you most likely spent a great deal of time with her team of nurses. Likewise, if you had a difficult pregnancy, a nurse was probably by your side assisting you the whole way.

Nurses are critical in the care of mothers and babies. Many families who have had a baby born prematurely or with a health condition have told us just how fantastic the nursing staff was at their hospital. Nurses are hardworking, compassionate, highly educated professionals who work around the clock to ensure that you and your baby get the care you need.

In honor of National Nurse’s Week we want to thank all of the nurses that have impacted March of Dimes’ families. In particular, we wish to congratulate the four nurses who won the March of Dimes Graduate Nursing Scholarship Awards.

To recognize and promote excellence in nursing care of mothers and babies, the March of Dimes offers several $5,000 scholarships annually to registered nurses enrolled in graduate programs of maternal-child nursing. The March of Dimes Dr. Margaret C. Freda Graduate Nursing Scholarship Award was established in 2016 to honor long-time March of Dimes National Nurse Advisory Council Chair, volunteer, and friend, Dr. Margaret Comerford Freda. This award is given each year to the highest scoring graduate nursing scholarship applicant. Congratulations to our winners!

Did you have an amazing nurse that took care of you or your baby? How did he or she impact your NICU stay?

Share your story and help us thank all nurses for their unending dedication and incredibly hard work.

 

Prevent syphilis in your baby

Monday, May 8th, 2017

doctorCongenital syphilis (present at birth) can cause serious lifelong health conditions, or even death, for a baby. Unfortunately, the number of congenital syphilis cases in the United States increased 46 percent between 2012 and 2015.

Syphilis is a sexually transmitted disease (STD), also known as a sexually transmitted infection (STI). You can get it by having unprotected sex with someone who is infected with syphilis. You can also get it by having direct contact with an infected person’s syphilis sore which may be on a person’s lips, in their mouth or on their genitals.

If a woman has syphilis and gets pregnant, she needs to be treated for syphilis. If she doesn’t receive treatment, syphilis can pass to her baby.

The good news is that congenital syphilis is preventable:

  1. Protect yourself first. Either don’t have sex or have safe sex by using a condom or other barrier method.
  2. Go to all your prenatal care checkups; your provider will test you for syphilis.
  3. If you have syphilis, your provider will begin treatment. The sooner you receive treatment, the less likely you and your baby may have complications from the infection.
  4. Ask your partner to be tested (and treated) for syphilis, so that you don’t get infected or re-infected.

If you’re not sure whether you have syphilis, or think you may have been exposed to it, contact your healthcare provider.

See our article for more details about protecting yourself and your baby from syphilis. Our article includes diagnosis and treatment information, too.

If you have questions, text or email AskUs@marchofdimes.org.

Allergies and pregnancy – can you get relief safely?

Monday, May 1st, 2017

allergies2It seems that everyone I know is struggling with allergy symptoms right now. The chief complaints are itchy eyes, sneezing, congestion, and generally feeling like a marshmallow invaded your head. Spring looks so beautiful but taking a deep breath outside can make you miserable!

There are many over-the-counter remedies and prescription medications available to help with symptoms, but if you’re pregnant it may not be wise to use any of them.

Here’s the low-down…

Pros and cons of possible allergy relief remedies during pregnancy

First of all, check with your health care provider before you take any over-the-counter medicine, supplement or herbal product to make sure it’s safe for you and your baby. Your provider will weigh the risks and benefits of taking any medication during pregnancy.

  • As a general rule, nasal saline (salt water) is good to use as it keeps your nasal passages moist and helps you blow away the allergens that accumulate in your nose. Avoid nasal steroids though, unless prescribed by your prenatal provider.
  • Decongestants, such as pseudoephedrine and phenylephrine, usually should be avoided, especially during the first trimester, as there is a possible association between its use and certain birth defects in babies. There are too many brand name decongestants to list here. Your best bet is to ask your prenatal provider about a medication before you take it.
  • Antihistamines, such asdiphenhydramine, doxylamine and chlorpheniramine, block your reaction to an allergen. You may know them by their brand names, such as Benadryl, Nytol, Unisom, Triaminic, and others. Some are considered safe to use during pregnancy, with the ok of your provider.
  • Read labels. Many symptom relief medications contain more than one ingredient. Also, these meds are meant for short-term, not long-term use. Your prenatal provider is the perfect person to ask if/when/how long you should be on any particular medication.

How about allergy tests and shots?

  • If you’re thinking about being tested for allergies, either test before you become pregnant, or wait until after your baby is born. Allergy skin testing is not done during pregnancy due to a small risk that a severe reaction can occur. Reactions such as hives, swelling of your tongue and throat and even loss of consciousness may occur. During pregnancy, a severe reaction may be harmful to your baby.
  • If you are currently receiving allergy shots (known as immunotherapy), be sure you let your allergist know you are pregnant or hoping to become pregnant. He may decide to continue the shots, adjust your dosage or stop them entirely during your pregnancy.

Other suggestions

  • Decreasing exposure to allergy triggers is key in helping you breathe easier. Some allergy healthcare providers recommend keeping windows and doors shut and running an air conditioner to keep the indoor air as free from outdoor allergens as possible. You may find it helpful to run a small air purifier in the bedroom at night to help you sleep.
  • Breathing steam or taking a warm shower may also help to decongest your nasal passages.

Bottom line

Every woman and every pregnancy is different; your provider will know the remedy that is best for you. The good news is that once you give birth, you will have more options available to you to combat Mother Nature’s pollen parade.

Have questions? If you are wondering about taking a specific medication during pregnancy or while breastfeeding, you can text or email us at AskUs@marchofdimes.org.

Join the blog-a-thon for NIIW

Wednesday, April 26th, 2017

niiw-blog-a-thon-badgeThis week is National Infant Immunization Week (NIIW), a time to talk about vaccines.

Do you remember mumps? How about chicken pox? For so many children, these are diseases they never had or will never get. But I remember them well – the incredible pain and swelling from mumps, the constant itching and scars from chicken pox, not to mention the many days of school that I missed. I knew kids who were hospitalized due to complications from both mumps and chickenpox.

Even my kids had chicken pox – one more severely than the other – as the vaccine was not yet available. How I wish they could have avoided that disease!

Rotavirus is another potentially very serious condition that most babies and children can avoid today. My daughter ended up in the hospital for two days due to complications from rotavirus – a very scary experience!

But perhaps the one that hits home the most for me is polio. The March of Dimes would not be here if it were not for this devastating disease. When President Franklin D. Roosevelt contracted this paralyzing disease, he called on our organization to raise money in order to fund research to develop a vaccine. The March of Dimes is named for the dimes that were “marched” to Washington from countless people to fund research into finding a vaccine in time to spare any more men, women, children and babies from getting this crippling disease.

We were successful. The polio vaccine was rolled out to the public in 1955 as a result of the pioneering work of March of Dimes’ funded researchers Drs. Salk and Sabin.

Due to the development of this vaccine, polio is practically a part of world history. It no longer exists in America, and is almost totally eradicated in other parts of the world. When you stop to think about it, that is really AMAZING. This little vaccine prevents lifelong paralysis and pain in millions of people.

What started with combating polio has led March of Dimes to continue working hard to ensure all babies get a fighting chance for a healthy start in life.

But vaccines are not just for babies

As important as it is for babies and children to receive their vaccines, it’s also critical that adults who come in contact with children stay up-to-date with immunizations. For example, pertussis (whooping cough) can be fatal for a baby. When parents and caretakers get the vaccine, they are ensuring that their baby will be protected until he is old enough to be immunized. In fact, it is so important to get this vaccine that all pregnant women are recommended to receive the Tdap vaccine during each pregnancy.

There’s no doubt about it -even adults need vaccines. And women need them before, during and after pregnancy.

It would be a very different world without the lifesaving vaccines that have spared us from so many diseases. NIIW is a time to highlight the importance of protecting babies and children from vaccine-preventable diseases and to celebrate the achievements of immunization programs in the U.S.

We’re a healthier nation and world because of them.

Please share your support for childhood immunizations by participating in this week’s blog-a-thon. Here are the details.

 

Zika Care Connect website offers access to specialists

Monday, April 24th, 2017

Mom & BabyA new website has been created specifically to help families affected by the Zika virus. It’s called Zika Care Connect (ZCC).

ZCC offers a network of specialized healthcare providers who can care for families potentially affected by the Zika virus.

Developed by the Centers for Disease Control and Prevention (CDC) in collaboration with March of Dimes, the ZCC features resources for families as well as healthcare providers.

Through the ZCC, parents and providers can locate and find specialists to provide the unique care a pregnant woman or a baby with Zika needs.

ZCC helps pregnant women and parents of Zika affected babies (patients):

  • find services and providers in their location who take their insurance and speak their language;
  • find resource tools such as fact sheets and Zika checklists;
  • get answers to questions through a HelpLine as well as the FAQ page.

All ZCC network healthcare providers can:

  • stay up to date on the most recent clinical guidance issued by the CDC in order to manage and care for patients with the Zika virus;
  • receive patient resource tools including downloadable materials;
  • make and receive referrals to/from other providers within the ZCC network.

Why is the ZCC important to babies affected by Zika?

It is important that babies born to a mother who tested positive for Zika be evaluated thoroughly after birth, and regularly as they grow. Some babies do not show signs of being infected with the virus at birth, but they may have developmental problems as they get older. This is why babies need to be continuously monitored. If they need specialty care, it is important that affected babies receive help as soon as possible.

If a baby is born with a Zika-related birth defect, developmental delay or disability, parents may feel overwhelmed by their baby’s complex medical needs. They will require support and guidance as their baby receives medical care from multiple providers. Healthcare providers need to work closely with one another and the family, to monitor the baby’s development and coordinate care.

The ZCC can help parents and specialists by providing resources and a network of healthcare providers, all in one place.

Check out the Zika Care Connect website:  www.zikacareconnect.org.

Call the ZCC Helpline 1-844-677-0447 (toll-free), Monday – Friday, 9am – 5pm EST, to get answers to questions and get referrals to healthcare providers.

With ZCC, pregnant women and families may now get the medical help and support they need.

Have questions? Text or email AskUs@marchofdimes.org.

Can sleep affect your child with special needs? Or you?

Friday, April 21st, 2017

dad-and-daughter-asleep

Quick answer…YES. Sleep is more than, well, sleep. It is restorative and essential to a healthy life. It is as important as water, food and air. For a child with special needs, it can make the difference between an “okay day” and a horrible one.

What does sleep do for your child?

A study in Pediatrics revealed that “Children with non-regular bedtimes had more behavioral difficulties…Having regular bedtimes during early childhood is an important influence on children’s behavior.”

Non-regular bedtimes can disrupt your child’s behavior because it interferes with a body’s circadian rhythms (sleep cycle). It may also result in sleep deprivation, which may then negatively affect the part of the brain responsible for regulating behaviors. But, when children with non-regular bedtimes changed to regular bedtimes, parents reported positive changes in their behaviors. (Yay!)

Sleep also helps a person…

• get to and maintain a healthy weight

• stay healthy (you get sick less frequently)

• grow (if you are a baby, child or teen)

• lower your risk of high blood pressure and diabetes

• boost your mood

• think clearly, be more focused, and sharp

All of these benefits will allow your child to feel happier, do better at school, avoid injuries and be at his best – and that includes being better behaved.

For adults, the benefits are the same, making you more efficient at work, more energetic, less likely to make mistakes, and able to maintain a positive outlook. It also helps you to maintain patience – something needed when you are dealing with babies, children or teenagers, with or without special needs.

How much sleep do you really need?

• newborns need 16 -18 hours of sleep each day

• preschoolers need 11-12 hours per day

• school-aged kids need at least 10 hours

• teens need at least 9 hours of sleep each night

• adults need about 7-8 hours of sleep each night (some people need more, some less).

Note the words “at least,” as there are many kids who need much more sleep in order to function properly, depending on their lifestyle and medical condition.

What happens if you don’t get enough sleep?tired-family-in-car3

Children and teens need sleep to help their bodies grow. Cells regenerate at night during sleep. By not getting enough sleep, the hormone balance in a child will be thrown off. Without adequate sleep, a child’s immune system will have a harder time fighting off germs and diseases.

If you don’t get enough sleep, your “sleep debt” will increase to a point when you will need to make up for the lost sleep. If you do not get the sleep you need, your body won’t operate as it should. Your judgment and reaction times will be negatively affected. This can be dangerous for adults, especially if you are caring for an infant or child, or you are driving a car. Lack of sleep and driving is risky – it is as dangerous a combination as drinking alcohol and driving!

Where can you get more info?

For information on how to get a restful night’s sleep, sleep tips for children and adults, and when to see a doctor regarding possible sleep problems, see this handy guide.

If you are pregnant, you may have trouble finding a comfortable sleep position. Try sleeping on your left side with a pillow between your legs. Here are other tips.

Bottom line

Sleep is not a luxury; it is a necessity. By keeping a regular bedtime, your child’s health and behaviors may improve. Think of sleep as an essential nutrient (like a vitamin). Then, you may be able to make sleep one of the priorities in your life.

If you and your little one get the sleep you need, you will see and feel a positive difference.

Have questions? Text or email AskUs@marchofdimes.org

For additional information on parenting a child with special needs, see our series on Delays and Disabilities.

New research on weight and pregnancy

Wednesday, April 12th, 2017

scaleBeing overweight during pregnancy can cause complications for you and your baby. The more overweight you are, the more likely you are to have pregnancy problems such as high blood pressure, gestational diabetes, c-section and even a miscarriage or stillbirth. If you’re overweight or obese during pregnancy your baby is more likely to be born prematurely, have a birth defect, or have heart disease, diabetes or obesity later in life.

More and more research is being done on how your weight can affect your pregnancy. In a recent study, researchers looked at information on more than one million children born to Swedish women who were followed for nearly eight years. They found that the overall risk of cerebral palsy (a birth defect) was nearly double in babies born to women with severe obesity. CP is a group of conditions that affects the parts of the brain that control muscles and movement.

The study authors say that obesity does not cause CP, but that there is an association between obesity in pregnancy and cerebral palsy risk. Getting to a healthy weight before pregnancy and maintaining healthy habits throughout your pregnancy can help reduce this risk.

“There continues to be evidence of many different repercussions and outcomes associated with being overweight or obese,” said Dr. Siobhan Dolan, medical advisor at the March of Dimes. “All the data is pointing to the same issue — that it’s good to get to a healthy weight before pregnancy and to gain the right amount of weight during pregnancy,” she said.

What can you do?

If you are currently pregnant, now is not the time to lose weight. But there are things you can do to be as healthy as possible.

Here are some tips:

  • Get early and regular prenatal care. Go to every checkup, even if you are feeling fine.
  • Have a chat with your health care provider about gaining weight during your pregnancy. Every woman and every pregnancy is different – that’s why it’s important to talk to your provider about how much weight gain is right for you.
  • Eat healthy foods and do something active every day. Even getting up from your desk every hour at work and walking around the office can be helpful.

Have questions? Email or text us at AskUs@marchofdimes.org

Developmental screenings are helpful for early diagnoses

Monday, April 10th, 2017

doctor-and-babyBefore your baby leaves the hospital, he receives a series of tests called newborn screening. These tests look for serious but rare conditions, including blood, hearing and heart disorders. If a problem is discovered through newborn screening, your baby may receive treatment and often avoid a more serious health problem. Early diagnosis is critical in detecting certain medical conditions.

Other screenings occur after your baby is home from the hospital

Between birth and age 3, your baby goes through incredible changes. He is growing and developing every day. To be sure that your baby is “on track,” your baby’s healthcare provider will check his developmental milestones at each well-baby visit.

These milestones are the major achievements in your child’s life. They include smiling, babbling, rolling over, sitting up, crawling, reaching grabbing, talking, walking and other accomplishments. Parents can check milestones, too. Here is a list of behaviors to look for at specific ages.

If either you or your baby’s provider are concerned that your baby is not progressing well, you can request a developmental screening. It is free as part of the federally funded early intervention program. Similar to newborn screening, this screening helps to identify potential health or developmental problems early.

If your child qualifies, the early intervention program may include services such as speech therapy, physical or occupational therapy, or even a special preschool setting. Early intervention can be enormously helpful in helping your child improve. And, the sooner you begin intervention, the sooner your baby can reach his full potential.

One example of a diagnosis where early intervention is particularly important is Autism. April is autism awareness month, a time to remember that this developmental disorder affects 1 in 68 children in the U.S. Officially called autism spectrum disorder or ASD, it is a developmental disability that can cause social, communication and behavior challenges – from mild to severe. This is why it is referred to as a “spectrum” disorder.

ASD can be difficult to diagnose because there is no medical test, like a blood test, to give a definite answer as to whether your child has it or not. Usually, children with ASD start showing signs or symptoms of the disorder in their toddler or preschool years, and some babies show signs in their first year of life. For this reason, taking your child for regular visits with his healthcare provider is particularly important so that his development can be monitored. If your child needs early intervention services, getting it early is key in helping him progress.

Bottom line

There is a wide range of “typical development” for children. But, if you are concerned about your child’s progress or feel he is delayed in reaching his milestones, talk to his healthcare provider sooner rather than later.

You can find more information in our series on Delays and Disabilities: How to get help for your child.

Remember – don’t delay with delays.

Have questions? Text or email AskUs@marchofdimes.org

Spring is here and so are ticks

Friday, April 7th, 2017

pregnant women walkingI remember the anxiety I felt after discovering a tick attached to my skin. I was reaching my hands behind my head and found a tick at the top of my neck where my hairline begins. The tick had already bitten me and was enlarged with blood. I never even felt the bite. That’s the tricky part about ticks, they crawl onto you and are so small they may be hard to see and nearly impossible to feel.

Why are these little creatures so dangerous?

Ticks can spread Lyme disease. Lyme disease is caused by a bacteria carried by an infected black-legged tick (also called a deer tick). This type of tick usually lives in wooded areas, like forests, or in places with high grass and bushes. A tick with Lyme disease can spread Lyme by biting you and has to be on your body for about 2 days before you can get infected.

If you get infected with Lyme disease during pregnancy, it may cause complications, including:

  • An infection in the placenta. The placenta grows in your uterus (womb) and supplies your baby with food and oxygen through the umbilical cord.
  • Stillbirth. This is when a baby dies in the womb after 20 weeks of pregnancy.
  • Congenital heart defects. These are heart conditions that are present at birth. They can affect the heart’s shape or how it works, or both.
  • Urinary tract defects. The urinary tract is the system of organs (like the kidneys and bladder) that helps your body get rid of waste and extra fluids. Urinary tract defects can cause pain, urinary tract infections, kidney damage and kidney failure.
  • Problems with your baby’s blood, like hyperbilirubinemia, which is when your baby’s blood has too much bilirubin in it. Bilirubin is a yellow substance that forms as red blood cells break down. Too much bilirubin can cause your baby to have jaundice. This is when your baby’s skin and the white parts of his eyes look yellow because his liver isn’t fully developed or working properly.

Untreated Lyme disease also may cause your baby to have a rash after he’s born.

How do you know if you have Lyme disease?

Early signs may include: headache, fever and chills, fatigue, muscle and joint pain, swollen lymph nodes  (glands throughout the body that help fight infection), and/or a rash called erythema migraines (also called EM). This rash looks like a bull’s eye around where the tick bit you.

Later signs may include: being short of breath, dizziness, stiff neck, severe headache, EM rash, joint pain and swelling, and/or facial paralysis (when you can’t feel or move parts of your face.)

If you have any signs or symptoms of Lyme disease, or you find a tick attached to your skin, call your health care provider. You can get a blood test to see if you have Lyme disease. Antibiotics are available and most women who get treatment during pregnancy have healthy babies.

Prevent Lyme disease by protecting yourself from tick bites

  • Use an EPA registered insect repellant.
  • Shower and check your body and clothes for ticks after being outside.
  • If you find a tick on you, remove it with tweezers – be sure to grab the tick near its head. Slowly pull the tick up and off your skin and be sure not to squeeze or crush the tick. Check with your healthcare provider or local Department of Health as to whether you should bring it in to be examined and tested for Lyme disease.  If not, flush the tick down the toilet. After removing the tick, clean the area with soap and water or rubbing alcohol.

For more information about Lyme disease and pregnancy, see our article.  

Have questions? Text or email AskUs@marchofdimes.org.