Posts Tagged ‘NICU Family Support’

March of Dimes resources for NICU parents

Thursday, September 13th, 2018

Being a parent in the newborn intensive care unit (also called NICU) can bring a mix of emotions, like fear, loneliness and anxiety. It can leave you with so many questions and a longing for support and understanding. March of Dimes helps moms and families throughout the NICU journey, as well as through every stage of pregnancy. It’s what we do. We invite you to use our digital resources to get information, answers to your questions and useful tools. They also can connect you with women and families who have had similar pregnancy and NICU experiences.

March of Dimes Facebook Mentorship Program for NICU Grad Moms:

If you’ve recently brought your baby home from the NICU, we’ve launched a digital platform to pair you with a fellow NICU grad mom as a mentor. Our Facebook Mentorship Program connects you with a support system to help you balance self-care with taking care of your baby, find support from moms who know what you’re going through and get advice and content from a trusted source like March of Dimes. If you’re interested in participating as a mentee, visit our Facebook Mentorship Program.

March of Dimes My NICU Baby™ App:

My NICU Baby app provides answers, tools and support to help you focus on your baby during the NICU stay. Track your baby’s feedings and learn about NICU staff, policies, equipment and terminology. Designed by experts, the app can help you advocate for the best care for your baby. Available for free on the App Store and Google Play. Visit mynicubaby.org for more information.

Share Your Story®:

Share Your Story is a warm, supportive online community filled with families who have been touched by, inspired by or personally affected by the mission of March of Dimes. These families know what it means to face uncertainty and fear at a time when most people expect excitement and joy. The community is fueled by caring, helpful individuals who “get it” because they have been where you are now. Share Your Story offers understanding, healing, friendship and support. Join Share Your Story.

The NICU–what you need to know

Friday, November 21st, 2014

in-the-NICU_jpg_rdax_50Having a baby admitted to the NICU can be frightening and confusing. There is a lot of information to learn and understand very quickly. It is easy to feel overwhelmed, stressed, and anxious. But understanding what is going on and knowing what to expect can help lessen anxiety and make you feel more confident about being a parent in the NICU. We have many resources available online that can help you.

As you probably learned very quickly, the NICU is a busy place. The babies need 24-hour care from a number of different medical professional. Here’s a list of NICU staff and what they do. Some or all of these people may be part of the NICU team at your hospital.

There are a number of conditions that babies may develop while they are in the NICU. It is important to know that every baby is different, and your little one may not have any of these complications or may have only one or two. However, here you can read an overview of some common conditions that may be treated in the NICU. If you have more specific questions about a certain medical condition, please email us at AskUs@marchofdimes.org and we will do our best to get you the information you need.

One of the most intimidating factors of the NICU can be seeing all the different machines that are hooked up to your baby. Here is a guide to some of the common equipment you see in the NICU. Once you understand the purpose of the machines, what they are doing, and how they are helping your baby, you may feel a little more comfortable. You can also read our post about understanding your preemie’s cues, to help you better understand her expressions and reactions.

You have probably already realized that there are many tests your baby will have while she is in the NICU. Blood draws, ultrasounds, eye exams, and weight checks…there is a lot to keep track of during her stay. These tests help diagnose any problems and help determine how they should be treated. They also help to monitor your baby’s progress. If you have any questions about what tests are being done, or the results of any testing, make sure you talk to your baby’s doctor or NICU nurse.

Our NICU Family Support Program offers comfort and materials to NICU families during their baby’s stay. The March of Dimes currently partners with over 120 hospitals in the US. You can ask the head nurse of your NICU whether your hospital is a NICU Family Support Partner.

Finally, one of the most important resources that you can access is Share Your Story.  Reaching out to other parents who understand exactly what you are going through can be very helpful. Giving and receiving comfort, support, and advice can help you to stay positive during your baby’s time in the NICU.

Helping you on a local level

Friday, September 20th, 2013

moms-to-be2Working with our partners, the March of Dimes strives to develop and implement local programs that will ultimately improve the health of babies. Through our network of chapters and volunteers, these programs reach over a million people across the country and Puerto Rico each year. We provide information and services designed to prevent premature birth and birth defects and to promote healthy pregnancies.

Community grants are awarded annually to fund the best programs. Local programs like Centering Pregnancy®, group prenatal care, are focused on improving the availability and quality of health care. We also support services that help promote the health and well-being of women and couples before pregnancy to increase their chances of having a healthy baby. Other programs educate doctors and nurses about reducing the rates of elective labor inductions and c-sections before the 39th week of pregnancy.

Through NICU Family Support®, we provide information and comfort to families coping with the experience of having a baby in a newborn intensive care unit (NICU). NICU Family Support complements and enhances family-centered care practices in partner hospitals, addresses the needs of families and provides professional development to NICU staff.

And the staff in our Pregnancy & Newborn Health Education Center answers your health related questions that come in on our News Moms Need blog, Facebook pages, Twitter accounts, Share Your Story community and direct emails sent to Askus@marchofdimes.org. We’re here to help.

Helping moms and babies across the country

Wednesday, December 5th, 2012

Working with our partners, the March of Dimes strives to develop and implement local programs that will ultimately improve the health of babies. Through our network of chapters and volunteers, these programs reach over a million people across the country and Puerto Rico each year. We provide information and services designed to prevent premature birth and birth defects and to promote healthy pregnancies.

Community grants are awarded annually to fund the best programs. Local programs like Centering Pregnancy®, group prenatal care, are focused on improving the availability and quality of health care. We also support services that help promote the health and well-being of women and couples before pregnancy to increase their chances of having a healthy baby. Other programs educate doctors and nurses about reducing the rates of elective labor inductions and c-sections before the 39th week of pregnancy.

Through NICU Family Support®, we provide information and comfort to families coping with the experience of having a baby in a newborn intensive care unit (NICU). NICU Family Support complements and enhances family-centered care practices in partner hospitals, addresses the needs of families and provides professional development to NICU staff.

Contact your local chapter of the March of Dimes to find out how we’re helping moms in your community.