Helping your baby thrive in the NICU

02
Dec
Posted by Sara

This video clip contains great information on nurturing your baby in the neonatal intensive care unit (NICU). In the video, real NICU parents describe different ways to bond with your baby while in the hospital, including skin-to-skin or kangaroo care.

 

 

For more helpful information about caring for your baby in the NICU, please visit our website. Learn about resources and support that can help you and your family while your baby’s in the NICU. Also, you can go to Share Your Story, the March of Dimes online community for families to share experiences with prematurity, birth defects or loss.

Have questions? Text or email us at AskUs@marchofdimes.org.

Zika virus case believed to be found in Texas

29
Nov
Posted by Barbara

Aedes aegypti mosquitoHealth officials in South Texas believe they have identified their first locally transmitted case of Zika virus in a woman living in Brownsville.

A locally transmitted case means that the person who got the Zika virus did not get it by traveling to a place where it is commonly found nor did the person have sex with someone who has the virus. She also did not get it through a blood transfusion or in a lab setting. In other words, it was most likely spread by an infected mosquito.

Texas health officials have set up surveillance sites in the Brownsville area where the infected woman lives, to test mosquitoes for possible infection. They are also trying to find out if anyone else in the area has been infected with the virus.

CDC Director Tom Frieden, M.D., M.P.H. said “Even though it is late in the mosquito season, mosquitoes can spread Zika in some areas of the country. Texas is doing the right thing by increasing local surveillance and trapping and testing mosquitoes in the Brownsville area.”

The CDC’s press release states: “As of Nov 23, 2016, 4,444 cases of Zika have been reported to CDC in the continental United States and Hawaii; 182 of these were the result of local spread by mosquitoes. These cases include 36 believed to be the result of sexual transmission and one that was the result of a laboratory exposure. This number does not include the current case under investigation in Texas.”

Now that the cold weather has arrived, you may think that the Zika virus is a thing of the past. But, this announcement of a likely locally transmitted case of Zika should be a reminder that Zika is still here, and it is still a threat.

If a woman gets infected with Zika during pregnancy, she can pass it to her baby. It can cause a birth defect called microcephaly, congenital Zika syndrome, and other developmental problems.

Read why Zika is harmful to pregnant women and babies, and what you need to know to keep you and your family safe.

Have questions? Send them to AskUs@marchofdimes.org.

 

Vote for us in Healthline’s Best Health Blog Contest

25
Nov
Posted by Barbara

We’re thrilled! News Moms Need has been nominated in Healthline’s “Best Health Blog Contest.” Now, we need your votes to win.

Won’t you take a moment each day, from now until December 12th, to cast your vote for us? It’s simple:

2016 Healthline winner widgetWe were grateful when we were selected as a winner in Healthline’s Best Pregnancy Blogs earlier this year.  Now, Healthline’s Best Health Blog award would be an even greater honor, especially as we cover topics from preconception to childbirth, to babies with special needs and staying safe from Zika.

Our goal is to keep you and your family healthy  – all News Moms Need!

We’d love to receive this award. But most of all, we’d love to know that you support our blog.

Thanks so much in advance for voting.

Your bloggers,

Barbara, Sara and Lauren

 

 

Pass the turkey, gravy, and the family health history form

23
Nov
Posted by Lauren

thanksgiving-turkey21Thanksgiving, or any other family gathering, is a great time to share good times, delicious food, and family memories. It is also a great time to learn about your family health history.

Taking your family health history can help you make important health decisions. It can help you learn about the health of your baby even before he’s born! Knowing about health conditions before or early in pregnancy can help you and your health care provider decide on treatments and care for your baby.

By understanding the health issues that run in your family, you can take positive steps for a healthier future. Since 2004, the Surgeon General has declared Thanksgiving as National Family History Day.  Here are a couple of ways you can easily gather your FHH:

So, somewhere between dinner and dessert, start a conversation with your relatives, and find out about your family health history.  The info you learn may make a huge difference in all of your lives, and in your baby’s life!

 

Prematurity Awareness Month continues…and here’s why

21
Nov
Posted by Barbara

WPD12-541WorldPrematurityDay2012Memes_01

Smoking increases the chance of premature birth

18
Nov
Posted by Sara

cigarette-buttsAlthough many people know that smoking during pregnancy can cause problems, 10% of pregnant women reported smoking during the last 3 months of pregnancy. When you smoke during pregnancy, your baby is exposed to dangerous chemicals like nicotine, carbon monoxide and tar. These chemicals can lessen the amount of oxygen that your baby gets. This can slow your baby’s growth before birth and can damage your baby’s heart, lungs and brain.

If you smoke during pregnancy, you’re more likely to have:

If you smoke during pregnancy, your baby is more likely to:

Secondhand and thirdhand smoke are also bad for your baby’s health. Being around secondhand smoke during pregnancy can cause your baby to be born with low birthweight.  Babies who are around secondhand smoke are more likely than babies who aren’t to have health problems, like pneumonia, ear infections and breathing problems, such as asthma, bronchitis and lung problems. There are also at an increased risk of SIDS.

If you quit smoking during pregnancy, you and your baby immediately benefit. According to the CDC, here’s how:

  • Your baby will get more oxygen, even after just one day of not smoking.
  • There is less risk that your baby will be born too early.
  • There is a better chance that your baby will come home from the hospital with you.
  • You will be less likely to develop heart disease, stroke, lung cancer, chronic lung disease, and other smoke-related diseases.
  • You will be more likely to live to know your grandchildren.
  • You will have more energy and breathe more easily.
  • Your clothes, hair, and home will smell better.
  • Your food will taste better.
  • You will have more money that you can spend on other things.
  • You will feel good about what you have done for yourself and your baby.

So make a plan to quit today. Need help? Check out these resources:

Have questions? Text or email us at AskUs@marchofdimes.org.

Join in World Prematurity Day activities tomorrow

16
Nov
Posted by Barbara

Light the world purple

The world will light up purple tomorrow to bring awareness to the problem of preterm birth.

Landmarks all over the world will be ablaze in purple to honor premature babies.

Tomorrow marks the 6th annual World Prematurity Day (WPD).

One in ten babies is born too soon. Premature birth is the leading cause of death in children under the age of five worldwide. Babies born too early may have more health issues than babies born on time, and may face long term health problems that affect the brain, lungs, hearing or vision. World Prematurity Day on November 17 raises awareness of this serious health crisis.

In New York City, the Empire State Building will be bathed in purple lights. State Capitol buildings in Alabama, Pennsylvania and Tennessee will light up purple, too.Here are just a few more places where World Prematurity Day will be glowing:

  • Birmingham Zoo, AL;
  • Union Plaza Building (downtown skyline), Little Rock, AR;
  • All 5 river bridges spanning the Arkansas River;
  • Hippodrome Theater, Gainesville, FL;
  • Nationwide Children’s Hospital, Columbus, OH;
  • Howard Hughes Corporation Building, Honolulu, HI;
  • Power & Light Building, Kansas City, MO;
  • Biloxi Lighthouse, MS;
  • Pacific Science Center, Seattle, WA;
  • The Auxilio Mutuo Hospital, Hato Rey, Puerto Rico.

What can you do?

Share your story and video about babies born too soon here on our blog, as well as on Facebook.

Get decked out in purple tomorrow, take a photo and post it to social media with #worldprematurityday and #givethemtomorrow.

Together, we can honor the 380,000 babies born too soon each year in the U.S.

Together, we can let people know that 15 million babies are born too soon around the world every year, and that 1 million of them won’t live to their first birthday.

Together, we can change the face of premature birth and give every baby a fighting chance.

Please join us tomorrow, to raise your voice.

4

Sometimes, love comes early – Pampers is offering a touch of love for those who do

14
Nov
Posted by Lauren

Kangaroo care Skin-to-Skin-223x300Today we welcome guest blogger Amy Tally, Senior Scientist, Pampers Hospital Diaper Development, P&G.

At Pampers, we believe every touch of love matters to the health and development of babies, especially the most vulnerable ones. That is why we’ve joined forces with the March of Dimes under the Pampers Touches of Love campaign this fall to celebrate all babies, especially those in the NICU, and those who care for them.

As part of this campaign, through World Prematurity Day on November 17, we’re asking everyone to show us all the ways that you give babies touches of love (from a hand hold or kiss on the forehead to wrapping your baby in a blanket chosen especially for her or him). For every #touchesoflove moment shared with @Pampers on Twitter & Facebook and @PampersUS on Instagram, we’ll make a $1 donation to the March of Dimes.*

One of the main reasons for our Touches of Love campaign was to underscore the importance of another major development from Pampers. We’ve worked closely with hospitals, pediatricians and nurses for 40 years, and as my colleagues and I met with hundreds of nurses over the past three years, they shared that current preemie diapers do not properly fit the smallest premature babies, and they were having to cut or fold the diaper or improvise ways to make it fit.

This is why we recently introduced our smallest diaper yet – the new Pampers Preemie Swaddlers Size P-3 diaper– because of all the challenges faced by babies who are born prematurely, a properly fitting diaper shouldn’t be one of them. Designed in partnership with NICU nurses, this diaper caters to the unique needs of babies weighing as little as one pound (500 grams) – to offer them a small touch of love. From the narrow core which offers Pampers excellent protection and allows their legs to lay comfortably and be optimally positioned, to the Absorb Away Liner™ that pulls away wetness and loose stools, a common side effect of antibiotics that premature babies are given, the new size P-3 diaper was created with the care and comfort of these tiny, premature babies at the forefront every step of the way. These size P-3 diapers are currently available in select hospitals in the United States, and will be available to hospitals across the U.S. and Canada before the end of 2016.

Being part of the development team, I can tell you that the creation of the new Pampers Preemie Swaddlers P-3 diapers was truly a labor of love. We wanted to make sure that our new diaper wrapped the tiniest babies in a gentle, loving touch because we understand that for premature babies, touch is not only a sign of love, but also a catalyst for survival and growth.

*Up to a maximum of $5,000. In addition, Pampers has made a donation of $100,000 in support of the Touches of Love campaign.

The March of Dimes does not endorse specific brands or products.

 

What if my baby needs surgery?

11
Nov
Posted by Sara

mom-and-preemieThe idea of surgery is scary for anyone. But learning your premature baby needs to have surgery can be terrifying. Learning what you can expect may make things a little easier. The following information is adapted from Preemies: The Essential Guide for Parents of Premature Babies.

Ask a lot of questions

  • Talk to your baby’s neonatologist, the surgeon who will be operating, the anesthesiologist, and any other specialists who may be involved in your baby’s care.
  • Don’t be afraid to ask ANY questions that you have. It may be helpful to write them down as you think of them so that you don’t forget to ask when you see your baby’s doctors.  You may meet with someone unexpectedly and you will not want to miss the opportunity to get answers to your questions. Perhaps keep a notebook or pad in your handbag so you can jot down your thoughts as they cross your mind.
  • Also, take advantage of talking to the NICU nurses. They have cared for many preemies and understand your fears and concerns and can give you an idea of what is going to happen.

Surgery

  • Most premature babies are put under general anesthesia for surgery. This means that your baby will not be able to move during the surgery. She will not feel any pain or have any memory of the procedure.
  • If general anesthesia is used, your baby will not be able to breathe on her own and will need to be on a ventilator.
  • The surgical team will be monitoring your baby to make sure she is as comfortable as possible. During the surgery, your baby will be kept warm. The room temperature will be raised and she will be covered as much as possible. IV fluids may be warmed as well.

Recovery

  • Preemies need very special care after surgery. Immediately after surgery, your baby will remain in a recovery area while the anesthesia wears off.
  • The surgical team will then accompany your baby back to the NICU and update the neonatologists and bedside nurses.
  • It will take some time for the anesthesia to leave your baby’s body. This means she may be on a ventilator to help her breathe. If your baby didn’t have a breathing problem before surgery, she may be removed from the ventilator within hours or up to a few days after surgery. Babies who did have breathing problems will most likely need to be on a ventilator for a longer period of time.
  • Pain can delay healing and recovery, so your baby’s NICU team will be watching carefully for any signs that she is uncomfortable. The medication your baby receives to manage pain depends on a number of factors. Make sure you ask the doctors and nurses if you have concerns.

Asking questions and understanding what to expect before, during, and after your baby’s surgery, can help you feel more confident and better prepared for the procedure. You may also find it helpful to talk to other parents who have been through a similar experience with their preemie. Share Your Story, our online community, will allow you to connect with other moms and dads who can offer advice and support.

And, of course, we are here to answer any questions you may have. Send them to AskUs@marchofdimes.org.

 

 

 

 

Recognizing families who care for preemies

09
Nov
Posted by Barbara

Preemie on oxygen_smIn addition to November being Prematurity Awareness Month, it’s National Family Caregivers Month. These two themes go together well. Caring for a premature baby can take a huge toll on parents and families. The focus is on the baby (naturally) which can be a round-the-clock roller coaster ride. But, who cares for the parents and other children?

Recently I attended a meeting for parents of special needs children. The common theme that day was coping. Parent after parent talked about the impact that one child can have on an entire family. When medical issues are present, as they are with a preemie, it is understood that everything else stops while you care for and make serious decisions related to your baby. If you have other children, they take a temporary back seat to your sick baby. Everyone pitches in to do what they must do to survive the crisis of a NICU stay.

Once the baby is home, the crisis may seem like it is over, but often it is only the start of a new journey – one with visits to more specialists than you knew existed, appointments for speech, physical,  occupational and/or respiratory therapy, a schedule of home exercises, and navigating the early intervention system. Thankfully, these interventions exist to help your baby, but it is clear that this new schedule can resemble a second full-time job.

If a parent is alone in this process (without a partner), it can be all the more daunting. Without a second set of eyes to read insurance forms, or a second set of hands to change a diaper when you are desperate for a shower, it can feel overwhelming.

What can you do?

This month is a good time to remember to reach out and ask for help. Friends often want to take a bit of the burden off of you, but simply don’t know how they can be helpful. Be specific with them. If you need grocery shopping done, send out a group text to your buddies and ask if anyone could swing by the grocery store to pick up a few items for you.

Try to set aside a couple of hours each week, on a regular basis, when you know you will have a respite. It could mean that your spouse takes care of the baby while you go take a walk or join a friend for coffee. Or, your parent or grandparent could take over for a bit so you and your spouse could watch a movie together. It doesn’t have to be a lot of time – but just knowing it is scheduled gives you something tangible to look forward to, which helps to keep you going and lift your spirits.

In other blog posts, I share ways parents can take the stress off. See this post for a list of survival tips, and this post for how to care for the brothers and sisters of your special needs child. They need special TLC!

Be sure to check out the Caregivers Action Network’s helpful tips for families as well as their useful caregiver toolkit.

If you are like me and have trouble relaxing, see “Stop. Rest. Relax…Repeat.” It may just inspire you to break the go-go-go-all-the-time pace and find ways to relax. Believe me – once you grab those precious moments to refuel, you will be glad you did. Your body and mind will thank you, and so will your family.

Do you have tips for coping? Please share.

View other posts in our Delays and Disabilities series, and send your questions to AskUs@marchofdimes.org.