Tag: birth defect

Do you have questions? Ask us

Do you have questions? Ask us

Have a question about becoming pregnant? Do you want to learn more about what to expect during your pregnancy? Is your baby in the NICU? Let us help. ...
The impact of rare diseases

The impact of rare diseases

In the U.S., any disease affecting fewer than 200,000 people is considered rare. Today, the last day of February is Rare Disease Day, an international ...

Anencephaly: causes, risks & what you can do

About 1,206 pregnancies are affected by anencephaly each year in the U.S. Anencephaly is a serious birth defect in which a baby is born without par ...
Cleft lip and palate awareness

Cleft lip and palate awareness

I remember seeing a thin scar on my friend’s upper lip, and wondering how she had gotten it. “I was born with a cleft lip,” she said. I became curious ...
Talking to your child about his medical condition

Talking to your child about his medical condition

Parents have written to us asking when they should tell their child that he has a disability, birth defect or chronic medical condition. Not only do t ...
How can we prevent birth defects?

How can we prevent birth defects?

Birth defects are common, costly, and critical. Common: Every 4 ½ minutes in the United States, a baby is born with a birth defect. Costly: Hospital ...
Good-bye NICHCY. Hello CPIR.

Good-bye NICHCY. Hello CPIR.

Like most people, I am resistant to change. Once I get used to something, I am irked when it is re-arranged or changed, or worse, eliminated. But, tod ...

What is a Pediatric Neurologist?

A Pediatric or Child Neurologist specializes in treating problems of the brain, spinal cord, nervous system and muscles, in babies and children up thr ...

Table of Contents for the Delays and Disabilities series

If you are new to this series, or if you want to catch up on posts you may have missed, this is a good way to see all the posts. They are grouped by t ...
Accommodations help vacationers with special needs

Accommodations help vacationers with special needs

Getting a change of scene, even for a day, is GOOD for you and your child with special needs. And now, it is getting easier to do. I have blogged a ...