Posts Tagged ‘neural tube defects’

World Birth Defects Day 2018

Friday, March 2nd, 2018

Every year, an estimated 8 million babies around the world are born with a serious birth defects. In the United States, that’s about 1 in 33 babies. Birth defects are common, costly, and critical. All communities are affected by birth defects. That is why, on March 3, March of Dimes is joining more than 100 organizations from around the world to observe the fourth annual World Birth Defects Day.

Birth defects are health conditions that are present at birth. They can cause problems in overall health, how the body develops or how the body functions. Birth defects are a major cause of child mortality, and those who survive, may face a lifetime of disability.

There are thousands of different birth defects. The most common and severe birth defects are heart defects, neural tube defects and Down syndrome. We don’t know all the reasons why birth defects occur. Some may be caused by the genes you inherit from your parents. Others may be caused by environmental factors, such as exposure to harmful chemicals. Some may be due to a combination of genes and the environment. In most cases, the causes are unknown.

While not all birth defects can be prevented, there are steps you can take to help you have a healthy pregnancy and healthy baby. One of those steps is to take a vitamin supplement with 400 micrograms (mcg) of folic acid in it every day. Taking folic acid before and during the early weeks of pregnancy can help prevent serious birth defects of the brain and spine, called neural tube defects. Even if you’re not trying to get pregnant soon, take a vitamin supplement with folic acid. Take a look at the video at the top of the page to learn more about folic acid.

Join us tomorrow to promote World Birth Defects Day and help raise awareness to help improve the health of all babies around the world.

Here’s how you can help:

  • Lend your voice! Register with your social media account and Thunderclap will post a one-time message on March 3rd. Sign up for the World Birth Defects Day Thunderclap campaign: http://po.st/WBDD18
  • Participate in the Buzzday on Twitter, March 3 by using the hashtag #WorldBDDay.

Learn more at: worldbirthdefectsday.org

Fever and pregnancy

Wednesday, January 31st, 2018

A fever is an increase in your body temperature. It usually happens when you’re sick and is a sign that your body is fighting off an infection. The average body temperature is 98.6°F (37°C). For a woman who is pregnant, a body temperature over 101°F (38.3°C) may be a concern. Fevers early in pregnancy may be linked to birth defects, like neural tube defects, and other problems in your baby. A birth defect is a health condition that is present at birth. Birth defects change the shape or function of one or more parts of the body. They can cause problems in overall health, how the body develops, or in how the body works. Neural tube defects are birth defects of the brain and spinal cord.

Signs and symptoms

Aside from an increase in body temperature, other signs and symptoms of a fever may include:

  •  Sweating
  • Chills and shivering
  • Headache
  • Muscle aches
  • Loss of appetite
  • Irritability
  • Dehydration
  • General weakness

Treatment

If you’re pregnant and have a fever, it’s very important to contact your health care provider. She can then determine what is causing your fever and if you need additional treatment. Most pregnant women can take acetaminophen (such as Tylenol®). Make sure you follow the directions on the product label and check with your provider before you take any medication.

Prevention

Here are some tips that you can take that may reduce your chances of getting sick:

  • Wash your hands often with soap and water. Wash hands before preparing or eating food, after handling raw meat, raw eggs or unwashed vegetables. Wash them after being around pets or animals and after changing diapers or wiping runny noses.
  • Get your flu shot. It’s safe to get the flu shot during pregnancy. It protects you and your baby from serious health problems during and after pregnancy.
  • Try to avoid people who are sick. If you’re sick, stay home. Don’t share your dishes, glasses, utensils or toothbrush.
  • Make sure you’re up to date with all your vaccinations. Vaccinations can help protect you and your baby from certain infections during pregnancy.
  • Handle foods safely. And avoid raw meat, fish, eggs & unpasteurized foods to prevent food poisoning.

Again, make sure you contact your health care provider if you have a fever and are pregnant. Your provider can make sure that you get the treatment you need to help you to start feeling better.

Are you getting your daily folic acid dose? Check the label

Monday, January 8th, 2018

Folic acid is a B vitamin that every cell in your body needs for normal growth and development. It helps your body make red blood cells that carry oxygen from your lungs to all parts of your body. If you take folic acid before and during early pregnancy, it can help prevent birth defects of the brain and spine called neural tube defects (also called NTDs). Some studies show that it also may help prevent heart defects in a baby and birth defects in a baby’s mouth called cleft lip and palate.

How can you be sure you’re getting the right amount of folic acid?

The best way to get the right amount of folic acid is to take a daily multivitamin that has 400 mcg of folic acid. Check the back of your bottle for the label (also called supplement facts). Look for the word “folate” on the label to see how much folic acid you’re getting.

The label tells you this information:

• Serving size. This tells you how much of the product is in one serving. One multivitamin usually is one serving.

• Servings per container. This tells you how many servings are in a multivitamin bottle. For example, if two pills is one serving and the bottle has 30 multivitamins in it, that’s 15 servings.

• Nutrients, like vitamin D, folate and calcium, in each serving

• Daily value (also called DV) of one serving. DV is the amount of a nutrient in a serving. For example, if the DV of folic acid in a multivitamin is 50 percent, that multivitamin gives you 50 percent (half) of the folic acid you need each day.

What else do I need to know about the labels?

Multivitamin labels now give new information about folic acid. In the past, they just listed mcg of folic acid. Now they list “mcg DFE of folate.” For example, for folate you’ll see “400 mcg DFE.” DFE stands for dietary folate equivalent. It’s the amount of folate your body absorbs. If a serving has less than 400 mcg DFE of folate, you need more than one serving to get all the folic acid you need each day.

Can I get folic acid from food?

Some foods have folic acid added to them. Look for the word “fortified” or “enriched” on the package label on foods like:
• Bread
• Breakfast cereal
• Cornmeal
• Flour
• Pasta
• Products made from a kind of flour called corn masa, like tortillas, tortilla chips, taco shells, tamales and pupusas
• White rice

Some fruits and vegetables are good sources of folic acid. When folic acid is naturally in a food, it’s called folate. Folate is found in lentils, black beans, peanuts, leafy green veggies like romaine lettuce and spinach, citrus fruits and orange juice.

It’s hard to get all the folic acid you need from food. Even if you eat foods that have folic acid in them, take your multivitamin each day, too. Labels on food products don’t always list the amount of folic acid in the product. New food labels that list folic acid will list mcg DFE of folate, just like for multivitamins.

Read more about why folic acid is important to you and your baby.

FDA approves folic acid fortification of corn masa — a great day for babies!

Thursday, April 14th, 2016

Hispanic mom and babyToday the U.S. Food & Drug Administration (FDA) announced that it will allow corn masa flour to be fortified with folic acid. This announcement is a victory for America’s mothers and babies, and caps more than 20 years of work by the March of Dimes to prevent serious birth defects of the brain and spine known as neural tube defects (NTDs).

Scientists have long recognized that folic acid can prevent NTDs.  After wheat flour and related products were required to be fortified with folic acid in 1996, the incidence of neural tube defects dropped by about one-third.  The Centers for Disease Control and Prevention (CDC) estimates folic acid fortification in the U.S. has saved about 1,300 babies each year from these fatal or devastating birth defects – a total of 26,000 babies born healthy since folic acid fortification began in 1998.

But corn masa flour wasn’t part of that rule, and that may be part of the reason that neural tube defect rates have remained higher among Hispanic babies. Foods like tortillas, tamales, pupusas, chips and taco shells can now be fortified. Adding folic acid to corn masa will help to prevent neural tube defects.

The March of Dimes looks forward to the prevention of even more NTDs in the U.S. — giving more babies a chance for a full, happy life, and giving their families the joy of a healthy child.

Please join us in thanking the FDA by tweeting to @US_FDA or posting on their Facebook wall with messages like these:

Join our Advocacy Action Center for updates about how you can make a difference for healthy pregnancies and healthy babies.

Folic acid fortification saves millions of dollars and reduces neural tube defects

Friday, January 15th, 2016

grainSince the U.S. started requiring that folic acid be added to certain foods (known as fortification), there has been a 28% reduction in cases of babies born with neural tube defects (NTDs). In addition, a recent study has found that fortification also saves hundreds of millions of dollars each year in medical and associated costs.

In 1998, to help women of child-bearing age get more folic acid, the US Food and Drug Administration mandated that grains, such as bread, pasta, and breakfast cereal be fortified with folic acid. Getting the right amount of folic acid before pregnancy helps to prevent birth defects of the brain and spinal cord, called neural tube defects (NTDs). Neural tube defects include anencephaly and spina bifida.

A study published this week, estimates how much money has been saved by fortifying grain products with folic acid. The study suggests that each year, folic acid fortification saves about $603 million dollars more than the cost of fortification. The estimated lifetime cost for medical care, special education, and caregiver time for a child born with spina bifida is approximately $791,900. Since fortification prevents about 767 cases of spina bifida each year, the annual cost savings are substantial. The authors of the study conclude that “Fortification with folic acid is effective in preventing NTDs and saves hundreds of millions of dollars each year.”

The March of Dimes supports fortifying corn masa flour with folic acid. By targeting food made with corn masa for folic acid fortification, it would be possible to lower the rate of NTDs among the Hispanic population as well.

Keep in mind that even if you eat a well-balanced diet that includes fortified foods, fruits and vegetables, it can still be hard to get enough folic acid. So make sure you take a multivitamin with 400 micrograms of folic acid every day.

Have questions? Email us at AskUs@marchofdimes.org.

Folic acid is in many cereals

Monday, January 11th, 2016

Bowl of cerealGetting enough folic acid before pregnancy doesn’t have to be a chore. Taking a multivitamin that contains folic acid is an easy way to get the amount you need. In addition, many breakfast cereals contain folic acid because it has been added to them – this is called fortification. You can check to see if your favorite cereal is fortified by reading the nutritional label on the box.

Here is information from the CDC along with a list of cereals fortified with folic acid.  Be sure to read the label to see the amount of folic acid in a single serving.

But remember…

Although cereal fortification is a good thing, it can still be hard to get enough folic acid every day. This is why taking a multi-vitamin that contains at least 400 micrograms of folic acid is recommended. But, be sure to check with your health care provider to see if you may need higher amounts of folic acid.

Once you’re pregnant, your folic acid needs will increase to at least 600 micrograms per day. Some women, like those who’ve had a pregnancy affected by NTDs (neural tube defects) or women with sickle cell disease, may need more.

Bottom line

Read labels, take your multivitamin with folic acid, and talk to your provider to make sure you are getting the right amount of folic acid every day, before you become pregnant, as well as during pregnancy.

Three common folic acid myths

Friday, January 8th, 2016

pills-moon vitaminWe receive a lot of questions about folic acid. Here are three of the most common misconceptions people seem to have.

Myth #1: Folic acid reduces the risk for ALL birth defects.

TRUTH: Folic acid reduces the risk of certain birth defects.

Folic acid reduces the risk for a very specific type of birth defect called a neural tube defect (NTD). The neural tube is the part of a developing baby that becomes the brain and spinal cord. A NTD can happen when the neural tube doesn’t close completely. This results in birth defects such as anencephaly and spina bifida. If all women take 400 micrograms (mcg) of folic acid every day before getting pregnant and during early pregnancy, it may help reduce the number of pregnancies affected by NTDs by up to 70 percent.

Myth #2: Folic acid will help me to get pregnant.

TRUTH: Folic acid is important to take before pregnancy, but it will not help you to become pregnant.

Folic acid does not help a woman to conceive. However, it is recommended that ALL women take folic acid, even if they are not trying to get pregnant. This is because folic acid can help prevent neural tube defects only if it is taken BEFORE pregnancy and during the first few weeks of pregnancy, often before a woman even knows she is pregnant.

The neural tube is one of the first structures that is formed in a developing embryo, therefore you need to make sure you are taking folic acid BEFORE you are pregnant. And because nearly half of all pregnancies in the United States are unplanned, it’s important that all women take folic acid every day, even if they are not planning to get pregnant. So take a multivitamin that has 400 micrograms of folic acid in it every day. Most multivitamins have this amount, but check the label to be sure.

Myth #3: I eat a healthy diet, so I can get enough folic acid from food.

TRUTH: It may be possible, but most women will not get enough from their diet.

Folic acid is naturally available in many fruits and vegetables, including:

  • Beans, like lentils, pinto beans and black beans
  • Leafy green vegetables, like spinach and Romaine lettuce
  • Asparagus
  • Broccoli
  • Peanuts (But don’t eat them if you have a peanut allergy)
  • Citrus fruits, like oranges and grapefruit

Many flours, breads, cereals, and pasta are fortified with folic acid, as well. This means they have folic acid added to them. You can look for the words “fortified” or “enriched” on the package to know if the product has folic acid in it.

However, it’s hard to get all the folic acid you need from food. And according to the Institute of Medicine (IOM), your body only absorbs about 50 % of that. So even if you eat foods that have folic acid in them, make sure you take your multivitamin each day too.

Some women, like those who’ve had a pregnancy affected by NTDs or women with sickle cell disease, may need more folic acid. Talk to your provider to make sure you get the right amount.

Folic acid can help reduce the risk of spina bifida

Wednesday, January 6th, 2016

Holding a multivitamin 2If a woman of childbearing age takes 400 micrograms of folic acid every day before and during early pregnancy, it can help reduce her baby’s risk for neural tube defects (NTDs). NTDs are birth defects of the brain and spinal cord. Spina bifida is the most common neural tube defect, affecting 1,500 to 2000 babies a year.

A baby’s neural tube normally develops into the brain and spinal cord. It starts out as a tiny, flat ribbon that turns into a tube by the end of the first month of pregnancy. NTDs happen if the tube doesn’t close completely.

Since birth defects of the brain and spine happen in the first few weeks of pregnancy, they often occur before a woman knows she’s pregnant. This is why it is important for a woman of childbearing age to take folic acid every day, even if she isn’t planning a pregnancy any time soon. By the time a woman realizes she’s pregnant, it might be too late to prevent these birth defects.

Types of spina bifida

There are four types of spina bifida, ranging from mild to severe. The mildest form (occulta), usually doesn’t cause health problems. However, other forms such as closed neural tube, meningocele and myelomeningocele (also known as open spina bifida) may cause symptoms such as bladder problems, infections and paralysis.

Spina bifida can also cause a number of medical conditions. If your child has spina bifida, he will need a team of medical professionals to monitor his health:

  • Pediatrician – a doctor who takes care of babies and children
  • Developmental Behavioral Pediatrician – a pediatrician with additional training in developmental disorders
  • Neurologist – a doctor who treats problems of the nervous system, brain and spinal cord
  • Psychologist – a professional trained to treat social and mental health problems
  • Psychiatrist – a doctor who specializes in treating mental health disorders
  • Urologist – a doctor who treats problems of the urinary tract (kidneys, bladder, ureters, and urethra)
  • Orthopedist – a doctor trained to treat disorders of bones, joints, muscles, ligaments, nerves, tendons and overall physical movement problems
  • Occupational Therapist – a professional trained to help with activities of daily living and fine motor problems
  • Physical Therapist – a professional trained to treat movement, balance, strength and physical problems

Learn more about the causes, types and treatments of spina bifida, on our website.

Bottom line

Take a multivitamin with 400 micrograms of folic acid every day, BEFORE and early in pregnancy, to help prevent certain birth defects.

Folic acid – why is it important?

Monday, January 4th, 2016

folic acid vitaminFolic acid is a B vitamin that promotes cell growth and helps prevent certain birth defects. It is Folic Acid Awareness Week – a great time to become familiar with how this vitamin can help you and your baby.

Your body needs to make new cells every day for blood, skin, hair and nails. Folic acid also plays an important role in helping red blood cells carry oxygen from your lungs to all parts of your body.

How can folic acid help your baby?

Folic acid helps prevent birth defects of the brain and spine, called neural tube defects, if taken before pregnancy and during the first few weeks of pregnancy.  So it is helpful to get in the habit of taking a multi-vitamin with at least 400 micrograms of folic acid every day, before you become pregnant.

Even if you are not planning to become pregnant, your body needs folic acid for normal growth and development.

What if you’re already pregnant?

Most pregnant women need to take a multi-vitamin with 600 micrograms of folic acid. Talk with your prenatal provider to see if this is the right dosage for you. A pregnant women needs extra folic acid throughout pregnancy to help produce the additional blood cells your body needs during pregnancy. Folic acid also supports the rapid growth of the placenta and fetus.

Can you get folic acid anywhere else?

Yes. Many foods have folic acid added to them. On packages of flour, breads, cereals and pastas, look for the words “fortified” or “enriched” – it means the product has folic acid added to it.

You can also get folic acid in its natural form – folate – in some fruits and vegetables. Folate can be found in spinach, black beans, peanuts and orange juice. Learn about the difference between folic acid and folate here.

Bottom line:

Even if you eat a well-balanced diet that includes fortified foods, fruits and veggies, it can still be hard to get enough folic acid every day.  By taking a multi-vitamin with at least 400 micrograms of folic acid every day, you will be sure to get the amount you need.

 

World BD day gets word out globally

Wednesday, March 4th, 2015

Sick babyThe twitter-sphere was all aglow yesterday for the first-ever World Birth Defects Day. In fact, 6,154,146 people were reached worldwide! Yup. It’s not a typo.

Twelve leading global organizations including the March of Dimes, along with scores of other foundations, hospitals, health care providers, government agencies, parents and individuals with birth defects took to Twitter to raise awareness. People in Australia, Belgium, Brazil, Canada, Chile, England, Germany, Greece, India, Ireland, Italy, Malta, Mexico, Mongolia, Netherlands, Panama, Philippines, Rwanda, Scotland, Spain, Switzerland, Tanzania, Turkey, and individuals from all over the United States participated. As the day progressed, #worldbdday tweets continually popped up on my computer screen. In case you missed it, here is a snapshot of important messages.

Birth defects are surprisingly common

Did you know that every 4 ½ minutes a baby is born with a birth defect in the US?

In the US, about 1 in 5 babies die before their 1st birthday due to birth defects.

Birth defects affect 1 in 33 infants worldwide.

More than 8 million babies worldwide are born each year with a serious birth defect.

There are thousands of different birth defects, and about 70% of the causes are unknown.

The most common birth defects are heart defects, neural tube defects and Down syndrome.

In the US, a baby is born with a congenital heart defect every 15 minutes.

More than 300,000 major birth defects of the brain and spine occur worldwide each year.

Many birth defects are discovered after the baby leaves the hospital or within the 1st year of life.

More than 3.3 million children under 5 years of age die from birth defects each year.

Babies who survive & live with birth defects are at an increased risk for long-term disabilities & lifelong challenges.

Early intervention services may help babies w/ BDs; get your child help by starting early.

Birth defects are costly. Financial and emotional costs of birth defects take a toll on families and communities worldwide.

Learn how to decrease your risk of having a baby with birth defects

Taking folic acid before & early in pregnancy can help to reduce the risk for BDs of the brain & spine.

Smoking during pregnancy is associated with an increased risk of certain BDs. It’s never too late to quit.

We can’t prevent all birth defects. We CAN prevent FASD! (Fetal Alcohol Spectrum Disorders)

FASDs are 100% preventable.

Alcohol can cause your baby to have BDs (heart, brain & other organs). Don’t drink if you are pregnant or trying to conceive.

Being overweight before pregnancy can increase the risk for some birth defects.

Not all BDs are preventable, but women can take steps toward a healthy pregnancy.

Make a PACT: plan ahead, avoid harmful substances, choose a healthy lifestyle, and talk to your doctor.

Raise awareness

Awareness of birth defects & the importance of care for children with these lifelong conditions is key.

The mission of the March of Dimes is to prevent birth defects, premature birth and infant mortality.

March of Dimes has invested more than $50 million in birth defects research in the last 5 years.

Genetics has long been a main theme of March of Dimes research.

MOD grantees have discovered genes that cause or contribute to a number of common birth defects, including fragile X syndrome, cleft lip and palate, and heart defects.

These discoveries pave the way for treatments and preventions for these birth defects.

 

For more information, email AskUs@marchofdimes.org. See other topics in the series on Delays and Disabilities- How to get help for your child, here.