Posts Tagged ‘NICU’

Helping your baby thrive in the NICU

Friday, December 2nd, 2016

This video clip contains great information on nurturing your baby in the neonatal intensive care unit (NICU). In the video, real NICU parents describe different ways to bond with your baby while in the hospital, including skin-to-skin or kangaroo care.

 

 

For more helpful information about caring for your baby in the NICU, please visit our website. Learn about resources and support that can help you and your family while your baby’s in the NICU. Also, you can go to Share Your Story, the March of Dimes online community for families to share experiences with prematurity, birth defects or loss.

Have questions? Text or email us at AskUs@marchofdimes.org.

What if my baby needs surgery?

Friday, November 11th, 2016

mom-and-preemieThe idea of surgery is scary for anyone. But learning your premature baby needs to have surgery can be terrifying. Learning what you can expect may make things a little easier. The following information is adapted from Preemies: The Essential Guide for Parents of Premature Babies.

Ask a lot of questions

  • Talk to your baby’s neonatologist, the surgeon who will be operating, the anesthesiologist, and any other specialists who may be involved in your baby’s care.
  • Don’t be afraid to ask ANY questions that you have. It may be helpful to write them down as you think of them so that you don’t forget to ask when you see your baby’s doctors.  You may meet with someone unexpectedly and you will not want to miss the opportunity to get answers to your questions. Perhaps keep a notebook or pad in your handbag so you can jot down your thoughts as they cross your mind.
  • Also, take advantage of talking to the NICU nurses. They have cared for many preemies and understand your fears and concerns and can give you an idea of what is going to happen.

Surgery

  • Most premature babies are put under general anesthesia for surgery. This means that your baby will not be able to move during the surgery. She will not feel any pain or have any memory of the procedure.
  • If general anesthesia is used, your baby will not be able to breathe on her own and will need to be on a ventilator.
  • The surgical team will be monitoring your baby to make sure she is as comfortable as possible. During the surgery, your baby will be kept warm. The room temperature will be raised and she will be covered as much as possible. IV fluids may be warmed as well.

Recovery

  • Preemies need very special care after surgery. Immediately after surgery, your baby will remain in a recovery area while the anesthesia wears off.
  • The surgical team will then accompany your baby back to the NICU and update the neonatologists and bedside nurses.
  • It will take some time for the anesthesia to leave your baby’s body. This means she may be on a ventilator to help her breathe. If your baby didn’t have a breathing problem before surgery, she may be removed from the ventilator within hours or up to a few days after surgery. Babies who did have breathing problems will most likely need to be on a ventilator for a longer period of time.
  • Pain can delay healing and recovery, so your baby’s NICU team will be watching carefully for any signs that she is uncomfortable. The medication your baby receives to manage pain depends on a number of factors. Make sure you ask the doctors and nurses if you have concerns.

Asking questions and understanding what to expect before, during, and after your baby’s surgery, can help you feel more confident and better prepared for the procedure. You may also find it helpful to talk to other parents who have been through a similar experience with their preemie. Share Your Story, our online community, will allow you to connect with other moms and dads who can offer advice and support.

And, of course, we are here to answer any questions you may have. Send them to AskUs@marchofdimes.org.

 

 

 

 

It’s Prematurity Awareness Month – Come chat with us!

Monday, October 31st, 2016

parents in the NICU

We have several Twitter chats scheduled in November, in honor of Prematurity Awareness Month.

Please join us:

Wednesday, November 2 at 1pm ET with neonatologist Dr. Suresh of Texas Children’s Hospital. Use #preemiechat

Topic:  Prematurity – causes, complications, and coping in the NICU

 

Wednesday, November 9 at 2pm ET with Mom’s Rising. Use #WellnessWed

Topic: Can your preconception health reduce your chances of giving birth early?

 

Tuesday, November 15th at 2pm ET with Genetic Alliance and Baby’s First Test. Use #preemiechat

Topic: Is prematurity caused by genetics? Can it run in families?

 

We hope to see you on Twitter!

For questions or more information about these chats, text or email AskUs@marchofdimes.org

birth announcement

Respiratory Therapists help babies and families breathe easier

Wednesday, October 26th, 2016

help-breathingIf your baby is in the neonatal intensive care unit (NICU), it can be nerve wracking to see him hooked up to machines, especially if he is having difficulty breathing. This is when a respiratory therapist (RT) can help.

“If a baby needs respiratory support, parents should not be afraid. We give them only what they need” says Ana Anthony, a respiratory therapist at Children’s National Health System in Washington, D.C., one of the finest children’s hospitals in the nation.  Ana notes that “Every day may be a different challenge. The babies will go through ups and downs – the body is very complex. Our goal is to have the baby breathe on his own.”

It’s Respiratory Care Week, a time to recognize the respiratory care profession and to raise awareness for improving lung health. According to the American Association for Respiratory Care, “Respiratory therapists provide the hands-on care that helps people recover from a wide range of medical conditions.”

Respiratory therapists work in a variety of settings including a hospital NICU. Babies born too early run the risk of having breathing problems because their lungs may not be fully developed. Other babies might have breathing issues because of an infection or birth defect.

Due to numerous medical breakthroughs, more and more babies who need treatment for breathing problems or disorders benefit from respiratory therapy. In fact, neonatal respiratory therapy has become its own medical sub-specialty. A neonatal-pediatric RT is trained to use complex medical equipment to care for the smallest babies with mild to severe breathing challenges. They visit their patients daily, as often as needed.

You may have been introduced to your baby’s respiratory therapist if you have a baby in the NICU. A respiratory therapist would have evaluated your baby’s breathing soon after your baby arrived. The RT looks to see if your baby is breathing too fast, if the breaths are shallow, or if your baby is struggling to breathe. Then, together with the NICU healthcare team of doctors, nurses and other specialists, the RT develops a care plan to help your baby.

Respiratory therapists are rigorously trained, first earning a college degree and then specific certifications. For example, Ana holds several credentials: a BSRC (bachelor’s degree in respiratory care), RRT-NPS, (registered respiratory therapist with a neonatal pediatrics specialty), AEC (asthma education certification) and ECMO (extra corporeal membrane oxygenation). If these titles sound impressive, it’s because they are! RTs are put through intense education and hands-on training and stay current with breakthroughs or changes in the field by obtaining different certifications.

Ana Anthony speaks for all RTs when she says “We love what we do and strive to have the best outcome possible for all our patients.”

 

You can learn more about respiratory issues that preemies may face, in our article. Did your baby receive care from a respiratory therapist? Tell us about your experience.

Have questions? Text or email AskUs@marchofdimes.org.

Note:  This post is part of the series “Delays and Disabilities: How to get help for your child.

 

Give them tomorrow

Wednesday, September 7th, 2016

Give them tomorrowToday is an important one here at the March of Dimes.

Today we launch our new campaign, Give them tomorrow, to raise awareness and funds to fight birth defects and premature birth, the #1 killer of babies in the United States.

This campaign is different. You have the opportunity to help give a fighting chance for every baby by:

  • sending a message of hope to a family of a baby in the NICU (newborn intensive care unit), which the March of Dimes will hand-deliver.
  • sharing your baby’s first milestones at #babysfirst with our social community.
  • engaging with us on World Prematurity Day, November 17th to raise awareness and learn about the cutting edge prematurity research that saves babies’ lives.

We have set a goal to generate 380,000 actions to save babies’ lives, to symbolize the 380,000 babies born too soon each year in the U.S. That’s 1 in 10 babies born prematurely (before 37 weeks of pregnancy). This rate is higher than most other high-resource nations.

Even babies born just a few weeks too soon can face serious health challenges and are at risk for lifelong disabilities including breathing problems, vision loss, cerebral palsy, developmental delays and intellectual disabilities. The problem of prematurity involves babies being born too soon and often with birth defects and complications that affect them for life — that’s if they make it through the first critical days and weeks. There are so many challenges for these babies and their families from day one that tomorrow is a dream.

Give them tomorrow is supported by our corporate partners who are committed to saving babies’ lives. Partners in 2016 include Mud Pie, Philips Avent, Famous Footwear, ALEX AND ANI, ALDI, Bon-Ton, and Anthem Foundation.

Won’t you join us today as we make a difference in the lives of all babies?

Together we can give them tomorrow by doing something today.

 

We're in this together

 

The March of Dimes is the leading nonprofit organization for pregnancy and baby health. For more than 75 years, moms and babies have benefited from March of Dimes research, education, vaccines, and breakthroughs. For the latest resources and health information, visit marchofdimes.org and nacersano.org. You can also find us on Facebook or follow us on Instagram and Twitter.

How to establish your milk supply while your preemie is in the NICU

Monday, August 8th, 2016

kangaroo-care-23If your baby is in the NICU, you may not be able to breastfeed the way you imagined. But providing your preemie with your breast milk will give her the best start in life.

Here are some tips to help establish your milk supply:

Ask for support

Seek out the help of a Lactation Consultant. She is a person with special training to help women breastfeed. A Lactation Consultant will be the best person to assist you with your breastfeeding goals. Your partner, friends and family are also there to support you during this important time.

Pump or express your milk early

Your milk is designed to meet your baby’s needs, so even though your baby was born early, the milk you make in the early days has a higher amount of antibodies to help her fight off infection. If your preemie is too small, sick or has birth defects that prevent her from breastfeeding, pump or hand express your milk as soon as possible. Your Lactation Consultant will be able to help you find the pump that works best for you. Ask your consultant if the milk you pump can be given to your baby in the NICU.

Spend time with your baby

If your baby’s nurse says it is OK, practice skin-to-skin or kangaroo care with your preemie. Not only is this beneficial for your baby, but having her so close will help you make more breast milk. Pumping or expressing your milk right after holding your baby skin-to-skin, or just smelling your baby’s scent, is an effective way to increase your supply as well.

Keep track & increase supply

Massage your breasts before and during your pumping session to maximize your output and improve the flow of your milk. Keep track of your pumping sessions with a log or notebook. This will help you remember how often you pump and how much milk you express. New moms get very tired – a log will help you remember when you last pumped. If you have questions or concerns, speak with your consultant and discuss your pumping log.

Where’s my milk?

After you give birth, you will start to see drops of colostrum, which is incredibly beneficial for your baby. In the beginning you may find it is easier to express your colostrum by hand into a spoon to feed directly to your baby. If you pump, these drops may get stuck in your breast pump parts. Have your consultant show you the best technique. Keep in mind, if you pump, you may not see any milk during your first few pumping sessions – do not be discouraged. Keep at it and ask your consultant for help and support.

Remember to avoid smoking, caffeine and alcohol. Speak with your health care provider about any medications you may be taking to be sure they are safe to take while breastfeeding.

Bottom line:

Stay positive. A pump can’t replace a warm baby at your breast, but any breast milk you supply your baby will help him get stronger and healthier each day. And soon he will be out of the NICU and in your arms!

The NICU dad – Superman has nothing on him

Wednesday, June 15th, 2016

This post is dedicated to all dads, in honor of Father’s Day.

kangaroo-care-dadFatherhood is not supposed to start in a NICU.

When the birth of your baby is unexpectedly early or if your child has medical issues, you may find yourself coping with the stress of having your baby in the hospital. The anxiety and fear about your baby’s special health care needs can be overwhelming. Add to that the emotions your partner may be experiencing, coordinating work, NICU visits, and possibly other children, and you have one difficult situation.

But, a NICU dad is strong and resilient.

He spends time in the NICU holding his baby skin to skin (kangaroo care). He sings and talks to his baby.

He asks questions and makes decisions about his baby’s medical care.Parents in NICU w baby R

He is reassuring and comforting to the mother of his child, as she physically and emotionally heals from pregnancy and childbirth, and copes with fluctuating hormones.

A NICU dad runs pumped breastmilk to the freezer, washes bottles and encourages mom to pump if she can.

If there are other children at home, dad becomes the coordinator of the home front. He makes lunches, runs kids to school, helps with homework, and reassures the children that mom will be home soon. Dad takes care of pets, cleans, grocery shops and hopefully delegates tasks to family members and friends to help out.

Through it all, it can be hard for a dad to take care of himself. He needs sleep, good food and breaks to exercise and relax. It’s important that he takes the time to re-fuel so that he can be the best champion for his baby that he can be. Relying on friends and family to help may not come naturally at first, but a NICU dad soon learns that it takes an army to get everything done.

Although becdad-with-preemie2oming a dad in the NICU was not the original plan, every path to fatherhood is unique. It has its own rewards and lessons. March of Dimes recognizes every dad’s efforts and dedication. We know that every dad is making a difference in his baby’s life. Dads are important, appreciated and very much loved!

Do you have a NICU dad you’d like to honor? Please share your story with us.

 

How to cope when your baby is in the NICU

Monday, June 6th, 2016

parents in the NICUToday we are fortunate to have Dr. Amy Hair, neonatologist and director of the Neonatology Nutrition Program at Texas Children’s Hospital, answer our questions on how parents can cope if their baby is in the NICU. Thank you Dr. Hair!

What is the first thing families should know when their baby is admitted to the NICU?

Parents should know that they are a vital part of the care team for their baby and the doctors, nurses and staff value their opinions and instincts.

Parents often find their first visit to the NICU overwhelming, but in time, they’ll become accustomed to the physical environment and start to tune out all of the machines, beeping and noises and just focus on spending time with their precious baby.

Depending on the baby’s illness and how premature they were born, parents will see machines, wires, hear beeping and other potentially alarming noises. We try to introduce parents to their baby’s environment and explain what each piece of equipment is used for, what the numbers are on the monitor (vital signs) and the wires they see are routine leads to pick up the heart beat tracing (EKG leads). At first glance, the NICU may appear frightening and may concern some parents but most babies in the NICU, regardless of how severe their illness is, receive the same type of cardiopulmonary monitoring (vital signs monitoring).

The most common types of equipment parents will see in the NICU are cardiopulmonary monitoring wires, incubators and respiratory support systems.

There are so many people in the NICU. How do I know who to talk to if I have a question?

The entire NICU team is there to help support and take care of babies and families in any way possible. Parents should feel free to reach out to any NICU staff with questions and concerns. If they do not know the answer immediately, they will work to find the answer as quickly as possible.

How can parents cope when their baby is in the NICU, especially if they have jobs, other children or travel a distance to the hospital?

In addition to the stress and fear they feel while their child is in the NICU, parents are going through many changes. Mothers are experiencing body changes, hormonal changes and role changes and fathers are adapting to their new role as a dad as well. If you become overwhelmed, ask for help. Remember that it’s okay to take care of yourself so that you can better take care of your baby.

Access your community resources or local support systems whether this is family and friends, a faith community or neighbors to help you with things such as babysitting your other children, cooking meals, running errands, etc. This will allow you more time for NICU visits without the overwhelming feeling that you are neglecting other aspects of your life.

Any other words of wisdom to offer parents?

We know parents can’t be here 24/7. Call the NICU any time you like. Although you may feel like you are pestering the team, this is never the case. We know that your baby is your number 1 priority regardless of your physical location and we are always happy to answer your questions regarding his or her status and well-being.
Amy-Hair-MD-PFW

 

As a Neonatologist, Dr. Hair specializes in care for infants born at the edge of viability as well as infants born at term or earlier with congenital defects or other conditions that need specialized intensive care. Her research focus is neonatal nutrition, specifically evaluating how our smallest premature babies grow during their hospital stay.

 

 

Pneumonia and preemies

Wednesday, March 16th, 2016

BabyOnChest-Pneumonia is an infection in the lung(s) which can make it hard to breathe. Premature infants are more prone to developing infections due to their immature immune systems. They were born before they could acquire their mother’s antibodies to fight off infection, which are usually transferred in the third trimester. In addition, due to prematurity, their lungs are not fully formed, making it easier to develop infections such as pneumonia.

Causes and treatments

Pneumonia can have different causes: viral, bacterial or even fungal. It can be hard for doctors to diagnose pneumonia, as it can look like other common preemie disorders, (eg. Respiratory Distress Syndrome). In addition, it may take some time for blood, urine or other lab tests to confirm the diagnosis. Therefore, as soon as pneumonia is suspected, most babies will receive an antibiotic that can fight a broad spectrum of bacteria to help combat the infection. Once the tests confirm the type of infection, the medication may be altered.

Your baby may also receive oxygen to help him breathe easier, or he may be placed on a ventilator. Keeping your baby well hydrated and nourished are also top priorities – his body needs nutrients to fight the infection. With all of this treatment, your baby’s lungs can begin to repair themselves.

Can pneumonia be prevented?

A premature baby may develop different infections for the reasons noted above. But the spread of infections can be avoided through the use of proper hygiene. Visitors who come to the NICU should be free from illness (colds, sore throats, coughs). All visitors should wash hands thoroughly or use foam disinfectant before seeing or touching your baby.

Some infections can spread through the air. Having visitors wear a face mask that covers the nose and mouth can provide an added layer of protection for your baby. NICU staff follows strict protocols regarding hand washing and keeping equipment squeaky clean. They are aware of how to prevent the spread of germs.

The good news

Most babies respond well to medications and recover without lasting issues.

Have questions? Send them to AskUs@marchofdimes.org

The A’s and B’s of the NICU

Wednesday, March 9th, 2016

help-breathingApnea (A) and bradycardia (B) are two conditions that are monitored in the NICU. Apnea refers to an interruption in your baby’s breathing, while bradycardia is the slowing of your baby’s heart rate.

Babies in the NICU are constantly monitored for these “A’s and B’s.”

Premature babies often have breathing problems because they were born before their lungs were fully developed. As many as 80 percent of babies born before 30 weeks of pregnancy have apnea. Full-term babies may have breathing problems due to birth defects, infections or complications from labor and delivery.

When is irregular breathing considered apnea?

Often, preemies do not breathe regularly. Your baby may take a long breath, a short one, and then pause for 5-10 seconds before breathing regularly. This is not considered harmful and your baby should outgrow it. But, if a preemie or sick baby stops breathing for 15 – 20 seconds or longer, or if the pause in breathing happens along with a slower heart rate (bradycardia) or a change in your baby’s color, then it is called apnea.

A premature baby’s heart beats much than faster yours. Bradycardia is defined as “the slowing of a baby’s heart rate from its usual range of 120 to 160 beats per minute to a rate of fewer than 100 beats per minute” according to the authors of the Preemies book.

The sensors on your baby’s chest are connected to a machine which will start beeping if your baby stops breathing. The nurse will check your baby and determine if she needs to be stimulated to help her start breathing again. To resume breathing, the nurse may gently touch your baby.

If necessary, your baby’s neonatologist may give your baby medication or place her on a C-PAP machine to help deliver air to your baby’s lungs. In C-PAP (continuous positive airway pressure), air is delivered to your baby’s lungs either through small tubes in her nose or through a tube that has been inserted into her windpipe. The tubes are attached to a machine, which helps your baby breathe. With C-PAP, your baby breathes on her own, but the steady flow of air coming in through the tubes keeps enough pressure in her lungs to prevent the air sacs from collapsing after each breath. It’s a little extra support to help her lungs work better.

Machines can be scary

Seeing your baby hooked up to machines can be scary, and when those machines start to beep, it can be nerve wracking. But, the way your baby looks is a very important indicator of how she is doing. For example, some experts recommend that when machines start beeping, take a look at your baby, not at the machine. Is your baby pink? Is her chest moving in and out? Are her nostrils slightly widening with each breath? If so, she is breathing and getting oxygen.

In addition, the machines are set up to start beeping with plenty of time for the nurse to attend to your baby, before your baby is in distress.

If your baby’s apnea is not resolving, the medical team will consider whether there is something else going on, such as an infection or other problem. As difficult as it is to see your baby struggle with breathing, it may be very comforting to know that apnea usually resolves without any problems.

Have questions? Send them to AskUs@marchofdimes.org. We are here to help.

Did your baby experience apnea? Did it resolve on its own?