Posts Tagged ‘World Birth Defects Day’

Why do we have World Birth Defects Day?

Wednesday, March 1st, 2017

wbddlogoIn a day and age when many cures exist for diseases and conditions, it may seem hard to believe that birth defects still occur. Yet, unfortunately they do.

Every year, millions of babies around the world are born with a serious birth defect. In many countries, birth defects are one of the leading causes of death in babies and young children. Babies who survive and live with these conditions are at an increased risk for long-term disabilities and other health problems.

What are birth defects?

Birth defects are health conditions that are present at birth. They may change the shape or function of one or more parts of the body. Birth defects can cause problems in overall health, how the body develops, or how the body works.

There are thousands of different birth defects. The most common are heart defects, cleft lip and palate, Down syndrome and spina bifida. Our website has a list of common birth defects as well as examples of rare birth defects.

We don’t know all the reasons why birth defects occur. Some may be caused by the genes you inherit from your parents. Others may be caused by environmental factors, such as exposure to harmful chemicals. Some may be due to a combination of genes and environment. In most cases, the causes are unknown.

Why #WorldBDDay?

The goal of World Birth Defects Day is to expand birth defects surveillance, prevention, care, and research worldwide. Naturally, the goal is to raise awareness, too.

You can help.

  • Lend your voice! Register with your social media account and Thunderclap will post a one-time message on March 3rd. The message will say “Birth defects affect 3-6% of infants worldwide. It’s a major cause of death/disability. Lend your voice!”
  • Join the Buzzday on Twitter, March 3, 2017 by using the hashtag #WorldBDDay.

With your help, we’ll raise awareness, which is the first step in improving the health of all babies.

What we’re doing

The mission of the March of Dimes is to improve the health of babies by preventing birth defects, premature birth and infant mortality. Our research grantees have discovered genes that cause or contribute to a number of common birth defects, including fragile X syndrome, cleft lip and palate, and heart defects. These discoveries may one day lead to interventions so that some birth defects can be prevented.

The March of Dimes offers information about how to have a healthy pregnancy on our website and this blog.

We answer health questions from the public through AskUs@marchofdimes.org, and promote messaging on our Twitter handles, @modhealthtalk, @nacersano (in Spanish) and @marchofdimes.

We welcome your comments and questions.

Get ready – tomorrow is World Birth Defects Day

Wednesday, March 2nd, 2016

baby with cleft lipEvery parent wants a healthy baby. But, the reality is that many babies are born with birth defects.

Some birth defects are clearly seen at birth. Other times it may be weeks, months or even years before the birth defect is discovered. There are thousands of different birth defects. Some are common while others are rare.

Here are a few facts about birth defects

  • Every 4 ½ minutes, a baby is born with a birth defect in the United States. That’s 1 in 33 babies.
  • About half of all birth defects have no known cause. The other half are caused by genetic conditions (such as cystic fibrosis or sickle cell disease) or a combination of factors.
  • Some birth defects have decreased in prevalence, such as cleft lip and palate, while others have increased, such as gastroschisis.
  • Birth defects are the leading cause of death in the first year of life. Sadly, babies who survive often face a lifetime of disabilities.
  • Birth defects affect all races and ethnicities.
  • Worldwide, more than 8 million babies are born each year with a serious birth defect.
  • Learn what you can do to prevent certain birth defects.

Here’s what’s new

The PUSH! Global Alliance – People United for Spina Bifida and Hydrocephalus –is launching tomorrow for World Birth Defects Day. The mission is to provide a collective global platform for all organizations to work towards research, prevention, care, and improved quality of life for people with spina bifida or hydrocephalus. Check them out at pu-sh.org.

Help us raise awareness

You can observe World Birth Defects Day by participating in social media activities and sharing a story or picture about the impact of birth defects on you and your family.

If you are a health care professional, speak about the steps a woman can take to help lower her risk of having a baby with a birth defect. Lend us your voice! Here’s how:

  • Join the buzzday on Twitter tomorrow, March 3rd – #WorldBDDay
  • Register to be a part of the Thunderclap – a message will be sent out at 9:00 a.m. EST tomorrow to help raise awareness.

The March of Dimes and over 60 other international organizations working for birth defects are joining World Birth Defects Day. We hope you’ll join us, too!

 

World Birth Defects Day 2016

Wednesday, February 24th, 2016

WBDD_LogoMore than 8 million babies worldwide are born each year with a serious birth defect. Birth defects are a leading cause of death in the first year of life, and babies who survive may be physically or mentally disabled, taking a costly toll on their families, communities and nations.

The March of Dimes and over 50 other international organizations working for birth defects are joining World Birth Defects Day, observed every year on March 3rd, to raise awareness of this serious global problem and advocate for more surveillance, prevention, care and research to help babies and children. We are urging the public, governments, non-governmental organizations, policymakers, researchers and health care providers around the world to help us work together toward a healthier future for children.

Birth defects affect all races and ethnicities. Everyone can get involved in raising awareness. Please observe World Birth Defects Day by participating in social media activities and share a story or picture about the impact of birth defects on you and your family.

What can you do?

  1. Post an announcement on your blog, Facebook, Twitter or other social media platform.
  2. Register to be a part of the Thunderclap — a message will be sent out at 9:00 a.m. EST on March 3rd to help raise awareness
  3. Join the Buzzday on Twitter on March 3rd. Plan to send one or more messages using the #WorldBDDay tag at some point during the day. Retweet both promotional and day-of messages to build our buzz for the day.

We look forward to having you join the conversation. Together, we can make strides to improve knowledge and raise awareness.

If you have questions, send them to AskUs@marchofdimes.org.

World BD day gets word out globally

Wednesday, March 4th, 2015

Sick babyThe twitter-sphere was all aglow yesterday for the first-ever World Birth Defects Day. In fact, 6,154,146 people were reached worldwide! Yup. It’s not a typo.

Twelve leading global organizations including the March of Dimes, along with scores of other foundations, hospitals, health care providers, government agencies, parents and individuals with birth defects took to Twitter to raise awareness. People in Australia, Belgium, Brazil, Canada, Chile, England, Germany, Greece, India, Ireland, Italy, Malta, Mexico, Mongolia, Netherlands, Panama, Philippines, Rwanda, Scotland, Spain, Switzerland, Tanzania, Turkey, and individuals from all over the United States participated. As the day progressed, #worldbdday tweets continually popped up on my computer screen. In case you missed it, here is a snapshot of important messages.

Birth defects are surprisingly common

Did you know that every 4 ½ minutes a baby is born with a birth defect in the US?

In the US, about 1 in 5 babies die before their 1st birthday due to birth defects.

Birth defects affect 1 in 33 infants worldwide.

More than 8 million babies worldwide are born each year with a serious birth defect.

There are thousands of different birth defects, and about 70% of the causes are unknown.

The most common birth defects are heart defects, neural tube defects and Down syndrome.

In the US, a baby is born with a congenital heart defect every 15 minutes.

More than 300,000 major birth defects of the brain and spine occur worldwide each year.

Many birth defects are discovered after the baby leaves the hospital or within the 1st year of life.

More than 3.3 million children under 5 years of age die from birth defects each year.

Babies who survive & live with birth defects are at an increased risk for long-term disabilities & lifelong challenges.

Early intervention services may help babies w/ BDs; get your child help by starting early.

Birth defects are costly. Financial and emotional costs of birth defects take a toll on families and communities worldwide.

Learn how to decrease your risk of having a baby with birth defects

Taking folic acid before & early in pregnancy can help to reduce the risk for BDs of the brain & spine.

Smoking during pregnancy is associated with an increased risk of certain BDs. It’s never too late to quit.

We can’t prevent all birth defects. We CAN prevent FASD! (Fetal Alcohol Spectrum Disorders)

FASDs are 100% preventable.

Alcohol can cause your baby to have BDs (heart, brain & other organs). Don’t drink if you are pregnant or trying to conceive.

Being overweight before pregnancy can increase the risk for some birth defects.

Not all BDs are preventable, but women can take steps toward a healthy pregnancy.

Make a PACT: plan ahead, avoid harmful substances, choose a healthy lifestyle, and talk to your doctor.

Raise awareness

Awareness of birth defects & the importance of care for children with these lifelong conditions is key.

The mission of the March of Dimes is to prevent birth defects, premature birth and infant mortality.

March of Dimes has invested more than $50 million in birth defects research in the last 5 years.

Genetics has long been a main theme of March of Dimes research.

MOD grantees have discovered genes that cause or contribute to a number of common birth defects, including fragile X syndrome, cleft lip and palate, and heart defects.

These discoveries pave the way for treatments and preventions for these birth defects.

 

For more information, email AskUs@marchofdimes.org. See other topics in the series on Delays and Disabilities- How to get help for your child, here.

March 3rd is the first ever World Birth Defects Day

Wednesday, February 25th, 2015

WBDD_LogoFamilies frequently write to the March of Dimes and share a story about their child’s struggle with a birth defect. Often, they ask what else they can do to help raise awareness. Well, here is a great way to get involved.

Help us mark the first World Birth Defects Day by participating in social media activities and sharing a story about the impact of birth defects on you and your family.

The March of Dimes and 11 other international organizations, including the CDC and the WHO, have created the first-ever World Birth Defects Day on March 3rd. We hope to raise awareness of this serious global problem and advocate for more prevention, care and research to help babies and children.

Birth defects affect 1 in 33 infants worldwide. Half of these birth defects will be detected soon after birth; the other half will be diagnosed during the first year of life. Birth defects are a major cause of death in infants and young children. Babies who survive are at an increased risk for life-long disabilities.

We need you.

On March 3rd, share your story about the impact of birth defects on you, your child or someone you know. With our partners, we’ll be urging governments, non-governmental organizations, policymakers, researchers, and health care providers around the world to help us work together toward a healthier future for children.

What can you do?

1.  Post an announcement on your blog, Facebook, Twitter or other social media platform.

2.  Register to be a part of the World Birth Defects Day Thunderclap. A message will be sent out at 9:00 a.m. EST on March 3 to help raise awareness.

3.  Join the Buzzday on Twitter on March 3rd. Plan to send one or more messages using the #WorldBDDay tag at some point during the day. Retweet both promotional and day-of messages to build our buzz for the day.

We look forward to having you join the conversation. Together, we can make strides to improve knowledge and raise awareness.

For more information, email AskUs@marchofdimes.org. See other topics in the series on Delays and Disabilities- How to get help for your child, here.